Wednesday, June 17, 2009

The Beginning

"How did this happen ?" Well how much time do you have?
I haven't been able revisit this time of my life till now, it was too painful, to scary to ponder.
But lately I've come to the realization that I'm truly on the other side of this, its in my rear view window......
It all started when I took care of my friends 6 Newfoundland dogs. I picked up some kind of nasty bug(parasite) that caused 8 weeks of the "trots" . Needless to say I lost about 20 lbs, I tried everything herbal nothing seemed to work. ( If I had it to do over I would have stuck with the herbal "big guns" I just didn't give it enough time.) BUT I went to a GI specialist, "they" prescribed Cipro a VERY big gun in the pharmaceutical world. It gave me Ulcerative Colitis . This caused more weight loss which caused a gallbladder stone, which "they " immediately wanted to remove. THE GALLBLADDER that is, I said "no thanks , I need that." So they gave me my very own " stent" to prevent another stone from lodging.
Anyone who has had a problem with the gallbladder knows how painful this, this was the beginning of a "journey in pain" good thing I didn't know what was coming. I had 3 major attack s with the GB, then it settled down.
I was on a liquid diet for UC, which caused me to lose more weight. Then my spleen wanted to get in the spotlight. It infarcted 2 times on separate occasions. More Pain, a LOT more. So "they" gave me blood thinners. The kind they give rats to kill them.

I was supposed to be monitored 1x a week," they" didn't want to do that, didn't think I needed that. So I bled out through my skin. Wounds all over my body. The worse was 9 inches long and 7 inches wide on my BUTT!! So I ended up with a hematoma that was near down to the bone , the whole way around my right" cheek". When it was almost healed it blew out again. I didn't want to turn the other "cheek" but unfortunately I did. But not as bad. Talk about pain. I was unbelievable!
So I went to the hospital , again, for the wound to be "debrided" , that when the "fun" began.

"They" put "compression wraps" the kind that fill with air and then let go, on my legs. The problem was I had something called "vasculitis" which is no-no for using the "wraps". So immediately my legs hurt, Michael got the nurse, they took them off. Enter--- next shift they put them on again, my toes went black and I was in so much pain, Michael then went to the Dr. who said " You never put those on a patient who has vasculitis!!" He put a sign on my bed to stop anyone else who wanted to play nurse , not to do that.
But the damage was done. The two toes were dead, after 4 months or so of more pain ," they " removed my toes.. It took 8weeks for the wound to heal.They were amputated AFTER the stroke.
Then " they " found the clots, presumably from the "compression wraps" in my legs. So " they" installed a Ivc? in my artery to keep any clot from causing trouble...
Then a Dr. gave me a medicine that caused the "smatter clots" to hit my brain. Amicar was it's name... it was one of the warning with this medicine, one of possible side effects.
We called the ER and told them I was coming, MY DOCTOR called them.   When I came in they made me answer questions for 15-20 mins (there goes my arm...... "time lost is brain lost") Could not walk or talk when she was finished .....THEN gave me the WRONG meds for an hour....

While I was in the ER a "nurse" put the IV in my hand, which later Dr B--- told us it should always be put in the groin, BECAUSE OF THE VASCULITIS!!! So , guess what.... my hand started to go black. "They" immediately put on nitroglycerin and I finally got most of my hand restored, but I lost my finger , just below the nail.
It took 4 months for the surgeon to agree to remove the tip. I was in and out of the hospital for the PAIN, more PAIN!! As the finger slowly died off the nerves were constantly screaming at me...... Especially at night!! So after 4 months it was PAINFULLY removed. ( are getting a pattern here?) For some reason " they" couldn't use anesthetic , the USUAL kind.... it hurt...... THAT'S ALL I'M GOING TO SAY! ( That was after the stroke........)

Now you know the MOST of the story........ cliff notes version


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